Managing Medicines For People With Dementia
Managing Medicines For People With Dementia will pilot and evaluate a multi-lingual (English, Italian and Macedonian), online resource to support medication management for people living with dementia and their family caregivers. Currently there is little support for informal caregivers, such as spouses or adult children, from Culturally and Linguistically Diverse (CALD) backgrounds to administer medication at home to family members who have some form of diagnosed cognitive impairment.
It is expected the project will result in the improved quality of life for both the patient, who will experience better health outcomes, and their family caregivers – who will be more confident in looking after the medicines for their relative. Initially, the website will be promoted through multiple local and national networks.
It is hoped that future funding from key national bodies will allow the resource to be translated into other community languages.
Managing Medicines For People With Dementia brings together researchers from a range of areas including information technology, medicine, nursing, education and public health all of whom have a passion for translational research which will help to improve the lives of older adults.
Dr Judy Mullan is a Senior Lecturer in Population Health for the School of Medicine in UOW's Faculty of Science, Medicine and Health. Judy has undertaken numerous research studies focusing on health literacy, medication management and patient education. She has published widely in these areas and has over 30 years of experience as a registered pharmacist.
Dr Lindsey Harrison is a Honorary Senior Fellow in UOW's Faculty of Social Sciences. Dr Harrison has a background in nursing, nutrition and anthropology, and has particular expertise in the application of qualitative research methodologies and social theory to public health research, with an emphasis on the social determinants of health
Assoc Prof Victoria Traynor is the program lead for multidiscipinary postgraduate studies in aged and dementia care. She has twenty-five years’ experience in clinical, educational and research roles which has provided her with opportunities to influence the delivery of aged and dementia care services. She is currently course co-ordinator for PG degrees in Gerontology and Rehabilitation Studies, and Dementia Care. Victoria is a keen promoter of contemporary learning through digital media and would bring these skills to the project.
Dr Khin Than Win is an Associate Professor in UOW's Faculty of Engineering and Information Sciences. Her research is in health informatics focusing on IT applications in chronic disease management and persuasive technology in healthcare. Her previous study on design features of online patient education website for chronic disease: from consumer (patients and carers) perspective is highly relevant to the study. Her role in this study is to analyse and apply appropriate information architecture and content management to maximise information delivery.
Robyn Gillespie is a PhD candidate in UOW's Faculty of Science, Medicine and Health. Robyn completed the initial qualitative research, with family caregivers of people with dementia, that informed this project and was instrumental in the development of the original website. She is interested in improving the communication of health information for older Australians, particularly to groups who may face barriers due to low health literacy.
Amanda Baker is a lecturer in the School of Education in UOW's Faculty of Social Sciences. Amanda is a lecturer in Teaching English to Speakers of Other Languages (TESOL). She has extensive experience with the needs of people from Culturally and Linguistically Diverse (CALD) backgrounds, and has experience teaching English as a second or foreign language in Australia, Canada, China, Japan and the USA. Her research investigates the oral communication needs of second language learners from diverse CALD backgrounds.
Dr Pippa Burns is a lecturer in the School of Medicine in UOW's Faculty of Science, Medicine and Health. Dr Burns has an interest in the communication of health information. Her PhD research investigated the feasibility and acceptability of providing online self-management education to older adults with asthma. Pippa has extensive research experience and has previously undertaken evaluations in real-world settings.